Category Archives: accountability

The Rambling Road: You’re not finished until you’re done, or understanding tired

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I recently read a quote from a personal trainer that said, “You’re not finished when you’re tired; you’re finished when you’re done.”

While I appreciate the sentiment of not quitting until you get to your goal, as someone with a chronic illness, I also understand it’s not always that easy.

What do I mean? Well, it seems cliché, but there’s tired and then there’s tired. There are times when I want to quit because, frankly, I’m just to lazy. I think that’s the kind of tired the trainer is talking about, and in that case, they’re right. No one can advance if they quit because it’s hard.

On the other hand, there are times when I want to quit because my body can’t. I tend to describe that as being tired too, but the reality is that it’s more unable than tired. Something has happened inside that means I don’t have the energy to expend, and pushing at that point can create disastrous consequences.

One of the most important parts of managing the complexity of a chronic illness is learning the difference and knowing when to quit. Further, there’s the task of knowing how to tell the people around you who care why you have to quit this time when, maybe, you didn’t have to the last time.

This isn’t an argument for quitting altogether. Rather, it’s an acknowledgement that, sometimes, the path isn’t a straight line toward the destination. Sometimes, we have to know when to quit so we can get ahead.

DLH

Read more at my The Rambling Road weblog…

The Rambling Road: A wheeze on the wind, or the sound of a fat boy running

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So, it turns out that, after years of trying to ignore it into going away, the simple fact is the best way for me to jump start the process by which I’m not going to be perpetually fat, tired, and sick is by running.

Yeah, I know, running…

To be fair, I used to run. For a few years in my 20s, I ran 2-3 miles nearly everyday. Then I stopped. That in itself is a long story, but one that likely helped set the stage for where I am now. Now, 20ish years later, I’m going back to the thing I once did, I guess.

One day, perhaps even soon, I hope to document the research that led me to that conclusion so that, at the very least, it’s out on the internet for anyone else searching for answers to judge for themselves, but for the moment let’s suffice it to say that running engages the specific biological pathways that help reduce fat around the liver, which fat is likely one of the main culprits of my complaints.

In several important ways, this running is going to be, lacking a better way of describing it, medicinal running, and the best way to describe this phenomenon is to do so by what it’s not going to be. Unless something in my own psychology changes, this running isn’t going to be about 5ks or marathons, not about PRs or ever increasing distances, and not about proving myself in any other way but one.

Along with a controlled diet and plenty of walking to complement the running, this effort will be about weight loss. It’s a ham-handed standard, I know, but the fact is that at my current weight–295lbs and counting, for those keeping track at home–it’s the single most effective way for me to measure whether what I am doing is achieving my primary goal.

I appreciate every piece of advice I’ve already received about this undertaking, and I always want to hear more of it, but please understand that I hear and evaluate any of it through the filter of what I already know I am trying to do. It may be that something you say helps me advance that cause, and I want to hear it, but please don’t be disappointed if I decide it doesn’t fit with what I am trying to do. It’s not that I haven’t listened. It’s that I am very focused on what I am trying to do.

To that end, I also plan to post a weekly update documenting my progress so that interested parties can keep track and so that I can have a log of what I’ve been doing for my own use. If you are keeping track and don’t see that update, please ask. I need the accountability.

For now, this is what it is: a fat boy running for his life. Literally. Stay tuned to see how it works out.

Read more at my The Rambling Road weblog…

The Rambling Road: Walking away

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Don’t worry: I’m not quitting.

No, instead, this blog is about a realization. It’s one I’ve stated here before, yet at least for me, I’ve realized it in a new way.

As far as my physical health is concerned, walking is going to be what saves me.

Once upon a time, I was a walker, a rambler in the truest sense of the word. Starting in junior high, I started walking to school any day I could, a journey of several miles. Once high school was upon me, I walked except when the weather was the worst for four years despite the distance.

Along the way, I developed an affection for trail hiking that carried me into my mid 20s. Then, a lot of life happened–the details don’t matter so much–and I kind of quit. It wasn’t a sudden thing, just over time, I walked less and less and hiked less and less, until I wasn’t doing it at all.

Since I got sick a year ago, on the days I’ve been able to walk, I’ve felt better, but walking every day has been a challenge for a variety of reasons. My new realization is that I’ve failed to deal with those reasons, and that is what is keeping me from walking.

I’ve decided to change that. First up is dealing with one of the colder Ohio winters in recent memory. It turns out that, since I got sick, I can’t stay warm like I used to. Cold weather takes it out of me, so walking in the cold is a struggle. That’s also an excuse. We have the technology for that, and it’s time I started using it.

So, next week, I have an extreme sports designed balaclava, cold weather over-mitts, and wind-pants arriving. They should do the trick most days when the temperature is below freezing an help eliminate one more excuse.

Next up will be rain gear. And, before you know it, I’ll be rambling along again like days of old.

Read more at my The Rambling Road weblog…

The Rambling Road: When excuses aren’t excuses

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A more bitter part of me wants to demand that, before anyone gives anyone with a chronic or enduring illness advice about what they should be doing, they should have to live through my past couple of weeks before giving it.

Now, before anyone panics, it’s just been a tough couple of weeks. I’ve been caught in what I call an “autoimmune loop,” first triggered by allergies, then flowing into everything from debilitating insomnia to blood sugar spikes and crashes. Good times…

I will grant, that having endured that, I’m particularly sensitive when people start throwing around, “Well, all you have to do is…” advice. I admit it. It pisses me off. After spending two weeks feeling like you’re a combination of drunk, high, coming down with the flu, and hopped up on way too much caffeine, that kind of advice hits wrong.

But I’m also listening, and in the course of listening, I have my own advice. I understand those of you trying to help people like me mean well. You sincerely want me to feel better. You believe you have answers, and the fact is that you do.

You’re also not listening.

Almost every conversation I’ve ever had with someone who believes they know how to fix me revolves around a single premise: everything I have to say about why their advice is a struggle is an excuse. I’m here to tell you, no, it’s not.

Yes, I can be doing more than I am. Yes, sometimes, I have to push through the terrible consequences of my current state of health in order to make it better than it is. That is true.

It is also true that, when my blood sugar crashes while I’m walking around the grocery store, so I have to cling to my cart like a lifeboat, and thank God my wife is with me to drive me home because I might not have made it otherwise, and I’m still shakey more than 24 hours later, it’s not an excuse. This stuff really happens. It really does limit what I am able to do. I have to keep in mind that every expenditure of effort I make comes with a cost I have to pay, sometimes for days. That’s not an excuse. It’s reality.

All I am asking you well meaning people to do is to understand that. Modify your expectations by the reality of the health I have right now. Not the theory of how healthy I could be. Not with a guilt trip about how I’m unhealthy because I did it to myself. With the fact that, right at this moment, what I’m experiencing is what is.

Help me with my reality. That will actually help.

DLH

Read more at my The Rambling Road weblog…

The Rambling Road: It’s been a while

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I figure it’s about time for an update if anyone is still paying attention. This year has been a roller coaster health-wise, but in general things are improving, so there’s that.

Recently, I started to re-engage myself with something I haven’t done in a long time: active accountability. In general, that means making a minimalist list of what I want to accomplish over a given period of time so as to be able to check against that list whether I am doing what I said I was going to do.

Some people will probably nod sagely at that confession, but my style of active accountability isn’t quite what most people do (is anything I do quite what most people do? But that’s a different conversation…). For example, rather than having a notebook or a calendar, I have a private blog. I use that blog as much as a checklist as I do a project management system. I tend to limit myself to five tasks a day, even if I know I have time for more because I realize that the stress of over-expectation is the second biggest reason I don’t get what I plan to done (the first being physical incapacity to do it).

The moral of the story is that I use this system to keep the things I am working on fresh in my mind and focused. I can tend to wander off if I don’t only to discover long periods of time have passed without getting anything demonstrable done. Active accountability helps me stay focused when I won’t otherwise be.

Updating this blog is now part of that accountability. I hope to make at least monthly updates, as much because I promised myself and others I would as because the act of writing is both invigorating and cathartic for me.

More will follow.

DLH

Read more at my The Rambling Road weblog…